Cystinosis Foundation charity - Margaret & Will Newman (11th May 2026)

Lovely to meet Margaret & Will Newman last night at our May meeting (11/5/26). They are passionately trying to raise funds for a rare disease, called Cystinosis which unfortunately their 10 year old Granddaughter, Ellie suffers from. Ellie is a twin but her sister Mollie doesn’t have it. Everything crossed that a cure is found very soon. Margaret was also selling up-cycled greeting’s cards in aid of the charity which lots of our members bought. We also offered to collect cards that we personally receive in future for Margaret to then up-cycle & to also sell her cards at our upcoming meetings. Thanks to Gill Green & Ann Booth for being our refreshments ladies & a very big thank you to Clare Duffield for our fabulous raffle (no pics sorry), the proceeds of £50 were also donated to the Cystinosis Foundation charity